I felt butterflies in my stomach, which pushed even my ribs. My heart was as gripped by a hand. My husband started to cry because of being not able to do anything. Time was going very slow, after ten minutes I got back my little baby. He was crying a bit, sometimes more. This was understandable because it was already 11 o’clock and he ate at about 4 in the morning last time. But because of the narcosis it was still not possible. When he fell asleep he had to be taken to ultra sound scan. My husband took him there, as I was not able to do. I have not slept and eaten literally for two days. At the end of this I could give him milk, so he calmed down. And then I had to go to the doctor.
Up to this point there was a hope, perhaps it is no the same, perhaps the doctors diagnosed something wrong, but not. We had to face the relentless truth. Retinoblastoma. We could get eased as my husband also could grow up with one eye (his other eye was removed, when he was 2,5 years old.) But my son has tumors in both eyes, altogether 5. The doctor drew up the plan. On Monday we go to the hospital for children in the Tűzoltó street,, Tuesday MRI, and then chemotherapy. She does not know what and how much he has to get, this will be decided by the oncologist. It depends on the fact if there are any transmissions in the brain. This is a very aggressive and quick tumor. So we started the race with the time for his life. Now we are at home for the weekend to think the things over. I gathered a lot of information. For example that it is a very rare disease, yearly 4-5 children get it in Hungary so there is no professional protocol for its therapy, and the instruments are not developed for that. Now we are negotiating with the eye clinics in Essen and we try to get into connection with an eye specialist- oncologist from the Switzerland, to start the healing of our little son.
Till then he takes chemotherapy with all its suffers, to win time and stop growing the tumor. We need much patience, insistence, positive approach, and more money. The situation is more difficult, because my husband is a public cervant, and from his little money there is 50% off, first because he took guarantee for a friend’s credit and then we could not pay our own credit, so we live in a rented house with the four children, and we get 40-50 thousand Forints plus child care money and mother’s leave.
We need help! Yours too, my dear reader! If you can, please help! Not us but to our little son! He has to live, He has not lived yet! In the meantime my thoughts are wandering…. We even us? Why even him? It is the worst in the morning, we hope, it is only a nightmare and we get up and everything is all right. But we get up and we have the same situation. And there is this monster, with which this little baby has to struggle.
I sat today behind the house into the garden and I told him, look, there are the trees. This here is the tomato and that is the kohlrabi. I do not know, if he will be able to see when the leaves fall from the trees. Or if he is able see them when they get again green color. I do not know how we will manage all that. If he ever can see anything in the future. If he can grow up, when we are over all these things, can he dream about the time, when he could see. It is terrible even to write it down. But we do not know what we have to face!
Please help us to get into Germany and specialists to be able to save his little life and perhaps his sight!
Our bank account: Unicredit Bank 10918001-00000031-22220000
International bank Account: Iban: hu32 10918001-00000031-22220000
SWIFT or BIC code: BACXHUHB
Account holder: Enikő Pintér
We also would appreciate: baby and children wear, articles for baby care, building material, fuel, and many shares.
Thank you for reading our little story, I promise, I will write about our way!
Thanks for everybody who stays with us, and support us psychically, and thanks for being with us to Dore and Viri. Thank you dear editor of this blog, I could not have done it on my own!